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Tools and Resources

Search NORD’s Database for reports on more than 1,300 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can  fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Narcolepsy Network

    “Narcolepsy Network is truly a patient-focused organization with many staff and board members living with this rare disease. ”

    Read more >

  • The Undiagnosed: Orphans of the Rare Disease Community

    “Undiagnosed diseases are lonely, but there are many who want to help.”

    Read more >

  • From Mother to Daughter

    “When Rhonda's daughter was diagnosed with a rare disease, she was too. ”

    Read more >

  • Giving Spotlight: Elizabeth and Chris Honor Son, Obie, with Donations to NORD, a Favorite Charity

    “This type of support is extremely helpful for families when a loved one is diagnosed with something rare and foreign”

    Read more >