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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can  fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Giving Spotlight: Paula Mann Honors Son, Garrett, with Donation to NORD

    “I believe in your mission and am honored to make this donation on behalf of our son, says Paula”

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  • Autoinflammatory Alliance

    “Autoinflammatory Alliance is celebrating its first ever Autoinflammatory Awareness Month this August! ”

    Read more >

  • New Video from NORD Promotes Awareness of Rare Movement Disorder Neurogenic Orthostatic Hypotension

    “First video launches in NORD’s new series to educate patients and doctors about rare diseases”

    Read more >

  • Member Spotlight: FIRST

    “Foundation for Ichthyosis & Related Skin Types (FIRST) ”

    Read more >