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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can  fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • NORD Issues Statement on Today’s Approval of the 21st Century Cures Initiative

    “NORD President and CEO Peter L. Saltonstall today issued the following statement on the approval by the House Energy and Commerce Committee of the 21st Century Cures legislative initiative and the introduction of the OPEN Act in the United States Senate..”

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  • 2015 Portraits of Courage Honoree, Lori Sames

    “Lori Sames doesn't have a PhD in the traditional sense, rather she has Passion, Heart, and Determination”

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  • 2015 Portraits of Courage Honoree, Yusuf Patel

    “Yusuf Patel is a brave 12 year old who raises awareness for his rare disease, MMA”

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  • 2015 Rare Disease and Orphan Products Breakthrough Summit

    “Save the Date for NORD's Summit - Oct. 21-22, 2015”

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