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Rare Disease Day Printable Handouts and Resources

Check out the newly added printable coloring handouts and other resources for Rare Disease Day. For more information, visit the Rare Disease Day website here.


Rare Disease Registries: Involve the Patient

Marshall Summar, MD, explains how patient registries can accelerate treatment and help close knowledge gaps about patients' daily experiences.   More >


BioCentury Article Highlights NORD Resource

NORD resource cited as model for how patient organizations can generate natural history data. More >


NORD Awards New Grants for Rare Disease Research

Throughout its 26-year history, NORD’s research grant program has administered more than 150 grants. More >


NORD's Timeline of Major Milestones

NORD's timeline of major milestones captures the driving progress on behalf of rare disease patients. More >


CORD's 3rd Annual Rarity Awards

The 3rd Annual Rarity Awards will recognize those with outstanding commitment toward overcoming challenges of rare diseases. The deadline is February 1st. More >


Rare Disease Day: February 28, 2015

NORD is the official U.S. sponsor of this one-of-a-kind day that brings together communities from around the world to raise awareness about rare diseases. More >


The Genzyme Running for Rare Diseases Marathon Team

The team is training now to raise money for NORD's assistance program for patients applying to the NIH Undiagnosed Diseases Program. More >


The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases. More >

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