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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can  fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Rare Action™ Road Tour, Denver, CO

    “The Rare Action™ Road Tour stops in Colorado”

    Read more >

  • Taking Rare Action™ on the Road

    “Tim Boyd, Associate Director of State Policy at NORD, promotes the Rare Action Network™ on a road tour across country this summer! ”

    Read more >

  • Member Spotlight: CLOVES Syndrome Community

    “Putting the spotlight on CLOVES Syndrome Community all week long! ”

    Read more >

  • Requests for Proposals

    “Requests for Proposals, applications now available ”

    Read more >