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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can  fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Miss Iron County Supports Rare Disease Advocacy and Awareness

    “NORD got to know Angelia Benson, Miss Iron County, and learned why she advocates for Rare Diseases and uses Rare Disease as her platform at pageants.”

    Read more >

  • Rare Action Road Tour, Houston, TX

    “The Rare Action Road Tour stops in Houston”

    Read more >

  • Rare Action Road Tour, Tallahassee, FL

    “The Rare Action Road Tour stops in Tallahassee”

    Read more >

  • Member Spotlight: LGDA

    “Lymphangiomatosis & Gorham's Disease Alliance works hard to support people affected by lymphatic anomalies”

    Read more >