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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can  fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Miss Connecticut Talks to NORD about Rare Diseases, the Miss America Pageant, and Voting for America’s Choice

    “We were excited to speak with Colleen Ward, who will represent the State of Connecticut, where NORD’s headquarters are based”

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  • NTM Info & Research Inc.

    “Saving and improving the lives of people with pulmonary nontuberculous mycobacterial (NTM) disease. ”

    Read more >

  • Giving Spotlight: Paula Mann Honors Son, Garrett, with Donation to NORD

    “I believe in your mission and am honored to make this donation on behalf of our son, says Paula”

    Read more >

  • Autoinflammatory Alliance

    “Autoinflammatory Alliance is celebrating its first ever Autoinflammatory Awareness Month this August! ”

    Read more >