You are here: Home

Welcome to NORD

News

FDA's Dr. Janet Woodcock highlights NORD's registry platform during 21st Century Cures Hearing

NORD attended the April 30 hearing, which contained many highlights for NORD and the rare disease community" More>

Read our Rare Mom Stories!

Help NORD celebrate Mother's Day by telling your rare mom story. More>

orgs-fda

FPWR and NORD Launch Global Prader-Willi Syndrome Registry to Accelerate Research and Cures

New database aims to accelerate research and cures for Prader-Willi Syndrome. More>

nih

NORD and FMC publish a special report on neurological diseases

NORD & FMC have published a special report on neurological rare diseases.

Events

orgs-fda

The Genzyme Running for Rare Diseases Marathon Team

The team will run in the Providence Marathon on May 3 to raise money for NORD's assistance program for patients applying to the NIH Undiagnosed Diseases Program. More >

nih

Portraits of Courage (May 19)

NORD's annual gala celebrates the progress and achievements of the rare disease community.   More >

Regional Membership Meeting (April 30-May 1)

All patient organizations (members and non-members) are welcome to attend. Network, learn, and talk about issues of importance to the rare disease community.

nih

Rare Disease Day: February 29, 2016

NORD is the official U.S. sponsor of this one-of-a-kind day that brings together communities from around the world to raise awareness about rare diseases. More >

WHAT IS NORD?

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases. More >

NORD Get our latest e-news

 
Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .