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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can  fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • NORD in the News: Financial Times Highlights NORD’s Training and Advice for Family Foundations

    “Families affected by disease are making a growing amount of philanthropic funding available to medical research”

    Read more >

  • NORD Publishes Physician Guide to Mitochondrial Myopathies

    “NORD and Rare Disease Experts Publish Guide to Promote Diagnosis and Treatment for Patients”

    Read more >

  • See What’s New and Exciting at the NORD 2016 Summit, October 17-18!

    “Enhanced networking opportunities with our conference networking apps and roundtable Lunch & Learn sessions”

    Read more >

  • Rare Action Network: NORD and Patient Groups in Oregon Seek to Reduce Out-of-Pocket Drug Costs for Patients

    “Prescription Drug Cost Working Group established and will meet for the first time in June”

    Read more >