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Tools and Resources

Search NORD’s Database for reports on more than 1,300 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can  fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Register for a FREE Webinar on the Undiagnosed Diseases Network (UDN)

    “Join NORD and the Undiagnosed Diseases Network (UDN) to learn more about a valuable resource for undiagnosed patients.”

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  • NORD Summit 2016

    “NORD's Rare Diseases and Orphan Products Breakthrough Summit will be held in Arlington, VA October 17-18”

    Read more >

  • Watch Live: Tomorrow’s Rare Impact Awards Ceremony

    “Watch the Rare Impact Awards Ceremony Online! ”

    Read more >

  • NORD to Hold Rare Diseases Roundtable

    “The roundtable will be held at the Warner Theatre in Washington, D.C., on May 17”

    Read more >