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FDA Blog Highlights NORD Registry

A blog by FDA senior official Dr. Janet Woodcock highlights NORD's new patient registry/natural history tool. Read the blog here >

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Tell Senate to Pass Newborn Screening Reauthorization Act

Join NORD in supporting this important March of Dimes campaign. More >

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BioCentury Article Highlights NORD Resource

NORD resource cited as model for how patient organizations can generate natural history data. More >

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NORD Publishes Physician Guide to HoFH

The latest in NORD's collection of guides for physicians is on rare disease that can lead to heart attack in children and young adults. More >

Events

NORD's Timeline of Major Milestones

NORD's timeline of major milestones captures the driving progress on behalf of rare disease patients. More >

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International Conference on Rare Diseases and Orphan Drugs (ICORD)

The 9th ICORD meeting will take place in the Netherlands, October 7-9. More >

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Two Patient-Focused Drug Development Meetings Announced

FDA will host a public meeting on patient-focused drug development for heritable bleeding disorders on Sept 22, and a meeting on idiopathic pulmonary fibrosis on Sept 26. More here and here>

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2014 Global Pediatric Innovation Summit

Boston Children's Hospital will host its 2nd annual pediatric innovation summit October 30-31, 2014 in Boston. More >

WHAT IS NORD?

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases. More >

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