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NORD and National Organization for Rare Disorders are registered trademarks of the National Organization for Rare Disorders.

The information about rare diseases provided by NORD is intended for educational purposes only. It should never be used for diagnostic or treatment purposes. If you have questions regarding a medical condition, always seek the advice of your physician or other qualified health professional.

NORD is a nonprofit organization, with limited resources. Therefore, we cannot guarantee that all information provided by NORD will be completely current and accurate. The information provided on this website should never be used as a substitute for professional medical advice.

Also, because of the large number of rare diseases, NORD's information is intended only to serve as a brief introduction. For more detailed, specific, and current information, please contact your personal physician or the organizations or agencies listed as "Resources" on specific disease reports.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .