How NORD is Funded
NORD relies upon donated dollars to fulfill its mission of improving the lives of individuals and families affected by rare diseases.
How are donations used?
Ninety-five cents of every dollar donated to NORD directly supports programs and services for patients and their families. Donations make it possible for NORD to provide information about rare diseases in patient-friendly language and referrals to helpful resources. Using email or a tollfree phone number (800 999-NORD), patients and family members may contact the NORD RN or genetic counselor for help with questions or concerns.
In addition, NORD helps patients form disease-specific organizations and provides mentoring to such organizations. And NORD provides leadership in advocacy on important public policy issues of concern to the entire rare-disease community.
Through the NORD Research Program, restricted donations may be made in support of research on specific diseases. Often, these are diseases so rare that no other source of funding is available.
NORD's administrative and fund-raising costs are very low when compared with those of other charities. To see the numbers, request a copy of our annual report or read it here.
How is NORD funded?
NORD’s primary sources of funding are grants and contracts, contributions, and an annual fund-raising event. Specific sources of revenue include administrative fees and grants for patient assistance programs; government, foundation, and corporate grants; individual and organizational membership dues; an annual gala; and philanthropic contributions from individuals, organizations, and companies. View the lists of NORD's current member organizations and corporate council members.