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Rare Disease Congressional Caucus

The Rare Disease Congressional Caucus is a forum for members of Congress to voice constituent concerns, share ideas, and build support for legislation that will improve the lives of people with rare diseases.  Members of Congress can join the Rare Disease Caucus by contacting the offices of co-chairs Rep. Joseph Crowley (NY-7) or Rep. Leonard Lance (NJ-7).

If you feel that your member of Congress should take up our cause, support laws that accelerate treatments and cures for rare diseases, and expand funding for research, encourage him or her to join the Rare Disease Caucus today! Find out how to contact your representative and find helpful hints here.

Pictures of the bipartisan leadership of the Congressional Rare Diseases Caucus:

Current Members of the Bipartisan Rare Diseases Caucus

  • Jason Altmire
    (PA-4)
  • Tammy Baldwin
    (WI-2)
  • Mike Capuano
    (MA-8)
  • Joseph Crowley (Co-chair)
    (NY-7)
  • Charlie Dent
    (PA-15)
  • Robert Dold
    (IL-10)
  • Eliot Engel
    (NY-17)
  • Anna Eshoo
    (Ca-14)
  • Jeff Fortenberry
    (NE-1)
  • Phil Gingrey
    (GA-11)
  • Jim Gerlach
    (PA-6)
  • Richard Hanna
    (NY-24)
  • Rush Holt
    (NJ-12)
  • Hank Johnson
    (GA-4)
  • Timothy Johnson
    (IL-15)
  • Peter King
    (NY-3)
  • Leonard Lance (Co-chair)
    (NJ-7)
  • Dave Loebsack
    (IA-2)
  • Zoe Lofgren
    (CA-16)
  • Carolyn Maloney
    (NY-14)
  • Tom Marino
    (PA-10)
  • Carolyn McCarthy
    (NY-4)
  • Michael McCaul
    (TX-10)
  • Jim Moran
    (VA-8)
  • John Olver
    (MA-1)
  • Bill Pascrell
    (NJ-8)
  • Gary Peters
    (MI-9)
  • Todd Platts
    (PA-19)
  • Bill Posey
    (FL-15)
  • Mike Ross
    (AR-4)
  • Steven Rothman
    (NJ-9)
  • Jon Runyon
    (NJ-3)
  • Loretta Sanchez
    (CA-47)
  • Adam Smith
    (WA-9)
  • Pat Tiberi
    (OH-12)
  • Fred Upton
    (MI-6)
  • Lynn Woolsey
    (CA-6)
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