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Join NORD in Advocacy


NORD serves as a liaison between the rare disease patient community and the national institutions that have a direct impact on their health, including:

  • The United States Congress
  • The Federal Government
  • Medical Societies
  • Broader Patient Advocate Groups
  • The Pharmaceutical, Biotechnology, and Medical Device Industries
  • The Health Insurance, Managed Care, and Hospital Industries

Current Initiatives and Issues Updates

Learn about the policy issues that are affecting the rare disease community, what NORD is doing and what you can do to help.

Advocacy Alliances

Find out how you can help NORD in Washington to provide advocacy for all members of the rare disease community.

NORD Policy Statements

View NORD’s past presentations, speeches, and position papers.

Hints for Contacting Your Representatives

Read helpful hints on the most effective way to contact your representatives.

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