NORD - National Organization for Rare Disorders, Inc.

• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

2005 NORD Tribute Banquet Honorees

National Health Leadership Award

The Honorable Jeff Bingaman
United States Senator, New Mexico

Public Health Leadership Award

Elizabeth Dickinson
Associate Chief Counsel for Drugs
U.S. Food and Drug Administration

Corporate Awards

Bausch & Lomb
for the development of Retisert for the treatment of chronic non-infectious uveitis

Pharmion Corporation
for the development of Vidaza (azacitidine) for treatment of subtypes of myelodysplastic syndrome

Synthes Corporation
for the development of the vertical expandable prosthetic titanium rib

Therapeutic Achievement Award

Dr. Robert Campbell, Jr.
for the development of the vertical expandable prosthetic titanium rib

Dr. Josep Torrent-Farnell
Chairperson of the European Union's Committee on Orphan Medicinal Products (COMP)

ABOUT | CONTACT NORD

Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

In light of the current concern about bioterrorism, NORD is offering full-text versions of four disease reports - Anthrax, Smallpox, Botulism and Bubonic Plague - free of charge. Click here for your free copies.

NORD Resource Guide

The new and expanded NORD Resource Guide (5th edition) is now available. It lists more than 1,300 organizations helping people with rare disorders.

Medical Assistance Programs

NORD’s Medication Assistance Programs provide specific prescription drugs to people who cannot afford them. (Go to Article)

Last modified Wednesday, April 30, 2008