
The U.S. Congress passed a resolution honoring NORD and the Orphan
Drug Act.
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NORD President Abbey Meyers, Vice President for Public Affairs Diane
Dorman, NIH Director Elias Zerhouni, MD, NORD Board member Carolyn Asbury,
PhD, and Stephen Groft, Pharm.D., Director of the NIH Office of Rare Diseases.
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Abbey Meyers, NORD Board Member Frank Sasinowski, FDA Commissioner
Mark McClellan, MD, PhD, and Marlene Haffner, MD, MPH, Director of the
FDA Office of Orphan Products Development.
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Members of the NORD Board of Directors presented a gift to Abbey Meyers.
A complete listing of NORD’s Board members appears on the About
NORD page.
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Congressman John M. Shimkus (R-IL), with Diane Dorman of NORD’s
staff and Frank Sasinowski of NORD’s Board.
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Larry Weaver, a founder of Orphan Medical, was applauded for his long-term
commitment to seeking new therapies for rare diseases.
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Several NORD staff members attended the Gala.
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The emcee was Susan Dentzer, PBS health correspondent on the nightly
NewsHour with Jim Lehrer.
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Susan Dentzer
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Lars-Uno Larsson (left) of Swedish Orphan International AB, with Jan
Eliasson, Swedish ambassador to the United States, and Bo Hanson, also
of Swedish Orphan.
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Marlene E. Haffner, MD, MPH, Director of the Office of Orphan Products
Development at the U.S. Food and Drug Administration (FDA).
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Stephen C. Groft, Pharm.D., Director of the Office of Rare Diseases
at the National Institutes of Health (NIH).
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Steven Pal of Allergan, one of the “top 20” companies
honored for their commitment to developing new therapies for rare diseases.
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FDA Commissioner Mark B. McClellan, MD, PhD
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NIH Director Elias A. Zerhouni, MD
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