Debra Lewis, Acting Director, FDA Office of Orphan Products Development; Yann Le Cam, Executive Director, EURORDIS |
Genzyme group with Tiffany House (seated) of the Acid Maltase Deficiency Association |
Judit Unger (Tourette Syndrome Association and NORD Board), Eric Pauwels, Shire Pharmaceuticals; Steve Bajardi (National Kidney Foundation and NORD Board) |
Alexion group |
Congresswoman Judy Biggert (R-IL)
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Mary Ann Wilson, Neurofibromatosis, Inc.; Stephanie Hunt (Mrs. Michigan), Rubinstein-Taybi Syndrome Foundation; Abbey Meyers, NORD; Brenda Duffy, Neurofibromatosis, Inc. |
David Meeker, Genzyme; Josephine Grima, PhD, Marfan Foundation and NORD Board; Karen Ball, Sturge-Weber Foundation and NORD Board |
Dr. Leonard Bell, Alexion; Maria Hardin, NORD and Michele McCourt, NORD
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Yann Le Cam, EURORDIS; Abbey Meyers, NORD; and Frank Sasinowski, NORD Board |
Steven Grossman, HPS Group
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Amy Verstappen, Adult Congenital Heart Association; Michael Langan, NORD; Mary Ann Wilson, Neurofibromatosis, Inc.
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Billy Tauzin, PhRMA (at the podium); Brad Gary, Allergan, background |
Congresswoman Judy Biggert (R-IL); Diane Dorman, NORD; Kisa Carter, NORD
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Gerard Barki, Storz Endoscopy; Eric Pauwels, Shire; Dr. Leonard Bell, Alexion; Dr. William Gahl, NIH; Yann Le Cam, EURORDIS; Dr. David Meeker, Genzyme
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Estelle Benson, GBS/CIDP International Foundation and NORD Board; Dr. William Gahl, NIH; Dr. Stephen Groft, NIH |
Abbey Meyers, NORD |
Brad Gary, Allergan; Trisha Brooks, BIO |
Mr. and Mrs. Steven Finkel and Mr. and Mrs. Vincent Brooks, Jr., Amyloidosis Support Groups |
Sukirti Bagal, MD, NORD; Pamela Bennett, Purdue Pharma |
David Albaugh, AstraZeneca; Ed Boyer, Mercy Medical Airlift and NORD Board |
Paula and Ron Brazeale, United Leukodystrophy Foundation; Ann Boody Moser (at right) |
William Gunnerson, Orphan Europe; Jean Campbell, NORD; Milton Ellis, Rare Disease Therapeutics |
Gerard Barki, Karl Storz Endoscopy-America; Mark Johnson, MD, Children’s Hospital of Philadelphia |
Kisa Carter, NORD; Elridge Proctor of the Tourette Syndrome Association; Judit Ungar, Tourette Syndrome Association and NORD Board |
NORD staff at the Banquet |
Shire group |
Robert Larson, NORD; Gerard Barki, Karl Storz Endoscopy-America; Mary Dunkle, NORD |
Eric Pauwels, Shire |
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Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
