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Medication Specific Assistance Programs

NORD’s Medication Assistance Programs are designed to help patients who are without insurance or are underinsured obtain access to these medications. The following is a list of NORD’s current Medication Assistance Programs.

BUPHENYL® Medication Assistance (sodium phenylbuterate)

Conditions:Urea cycle disorders

Company:Hyperion Therapeutics

Contact:Reimbursement Hotline at 1-800-711-0811

Email:buphenyl@rarediseases.org

Fax:1-203-349-3277

CARBAGLU Medication Assistance

Conditions:NAGS Deficiency

Company:Orphan Europe

Contact:1-855-570-4092

Email:carbaglu@rarediseases.org

Fax:1-203-349-3278

CARNITOR® Medication Assistance (L-Carnitine or levo carnitine)

Conditions:Primary systemic carnitine deficiency, inborn errors of metabolism resulting in secondary carnitine deficiency, carnitine deficiency in patients with end-stage renal disease who are undergoing dialysis

Company:Sigma-Tau Pharmaceuticals, Inc.

Contact:1-844-558-7542

Email:carnitor@rarediseases.org

Fax:1-203-349-3279

CYSTADANE® Medication Assistance (betaine anhydrous for oral solution)

Conditions:Homocystinuria

Company:Rare Disease Therapeutics, Inc.

Contact:1-844-558-7542

Email:cystadane@rarediseases.org

Fax:1-203-349-3280

ITB® Therapy Assistance Lioresal® Intrathecal (baclofen injection)

Note:Closed to new applicants

Conditions:Severe spasticity

Company:Medtronic, Inc.

Contact:1-844-559-2656

Email:ITB@rarediseases.org

Fax:1-203-349-3281

MATULANE® Medication Assistance (procarbazine hydrochloride)

Conditions:Hodgkins lymphoma (Stage III and IV)

Company:Sigma-Tau Pharmaceuticals, Inc.

Contact:1-844-558-7542

Email:matulane@rarediseases.org

Fax:1-203-349-3282

Opium Tincture® Medication Assistance

Conditions:Severe diarrhea

Company:Marathon Pharmaceuticals

Contact:1-844-559-2662

Email:opiumtincture-seconal@rarediseases.org

Fax:1-203-349-3193

Seconal® Medication Assistance

Conditions:Short term sleep disorders

Company:Marathon Pharmaceuticals

Contact:1-844-559-2662

Email:opiumtincture-seconal@rarediseases.org

Fax:1-203-349-3193

Therakos Photopheresis Therapy

Conditions:Cutaneuos T-Cell lymphoma (CTCL)

Company:Therakos, Inc

Contact:1-877-241-7220

Email:therakos@rarediseases.org

Fax:1-203-428-4472

VSL#3 DS Medical Foods

Conditions:Ulcerative colitis or ILEAL pouch

Company:Sigma-tau Pharmaceuticals, Inc.

Contact:1-877-279-2459

Email:vsl3ds@rarediseases.org

Fax:1-203-349-8172

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