To Top

Contact Us

NORD Office Locations

National Organization for Rare
Disorders National Headquarters

55 Kenosia Avenue
Danbury, CT 06810
Phone: 203-744-0100
Fax: 203-263-9938

Washington, DC Office

1779 Massachusetts Avenue
Suite 500
Washington, DC 20036
Phone: 202-588-5700
Fax: 202-588-5701

Massachusetts Office

1900 Crown Colony Drive, 4th floor
Quincy, MA 02169
Phone: 617-249-7300
Fax: 617-249-7301

Media Inquiry

Jennifer Huron
Phone: (203) 304-7258

Call Center Hours

Patients can contact NORD’s Patient Services Representatives at 1-800-999-6673 during the following hours:

Monday-Thursday: 9:00 a.m.- 8:00 p.m. EST

Friday: 9:00 a.m.- 6:00 p.m. EST

Si deseas hablar con alguien en espanol por favor llame al (844) 259-7178 para asistencia.

*Please note the following dates as ones that NORD’s call center will be either closed or open for limited hours due to the holidays.*

Office Closures:
Monday, October 10: Columbus Day
Thursday, November 24: Thanksgiving
Friday, November 25
Monday, December 26: Christmas
Limited Hours:
Wednesday, November 24: 9:00 A.M.-5:00 P.M. EST
Friday, December 23: 9:00 A.M.-2:00 P.M. EST
Friday, December 30: 9:00 A.M.-2:00 P.M. EST

Please note that NORD provides this information for the benefit of the rare disease community.  NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments.  Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.


Contact Us

Please use this form if you are seeking additional information from our Information Services Team.
  • If you are writing in regards to a specific disease area, please tell us here. If you do not have a diagnosis yet, you can write "undiagnosed."
  • Please provide a little more information about your inquiry so that we can better address your needs.