In honor of National Volunteer Month, we invite you to attend a webinar to learn about different volunteer opportunities with NORD! Join us to hear from current volunteers engaged with Running for Rare®, legislative advocacy, Rare Disease Day, and our State Ambassador Program! Click here to register!
Help support Danny's Dose Alliance in our legislative, regulatory, and educational efforts to assure prompt and proper care for over 28 million Americans living with 1 of 32 primary conditions identified to date that require specialized emergency treatment. Join us for a trivia night that'll be full of fun and laughter, great food, raffle items, …
Continue reading "Decade Dash Trivia Night for Danny’s Dose"
Dine-in or take-out at Michael's Tap Room in Bethel, CT on Monday May 6th between 5pm-8pm and a portion of the proceeds will be donated to NORD! Reservations are encouraged.
Join the California Rare Action Network for a Special Tea Brunch honoring rare moms on Saturday, May 11 from 10am-2pm. This event is free for mothers of children living with rare diseases. Please RSVP by May 5th; registration is required, click here to register. Location: Good Morning Maxwell, 90 Mission Drive #6, Pleasanton, CA 94566
This meeting will be held virtually, the meeting access will be posted closer to the meeting date.
Learn more at https://runningforrare.org/events/
The 2024 NORD® Living Rare, Living Stronger® Patient and Family Forum will be held in Los Angeles, CA at the Hilton Universal City on June 8, with a welcome reception the evening of June 7. After six years, we are excited to bring this program to the west coast! This event will bring together the incredible rare disease …
Continue reading "NORD® Living Rare, Living Stronger® Patient and Family Forum"
Learn more at https://runningforrare.org/events/
Learn more at https://runningforrare.org/events/
Learn more at https://runningforrare.org/events/
Learn more at https://runningforrare.org/events/