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Patient Stories


Giving Spotlight:  Honoring Mom-Mom’s Legacy with Research and Awareness

Nine-year-old Erin told her mom, “Mommy, I hate cancer. Why don’t doctors figure out what causes it?”  Her mom said doctors are trying.  But that was not enough for Erin.  She and… Read More


Giving Spotlight: Parents Thank NORD for Saving Daughter’s Life

Laurie and Chuck Eallonardo were thrilled at the birth of their twins, Jenna and Caden. Laurie felt happy and relieved that she had been able to carry them for 38 weeks, almost to full… Read More

HomeServe USA CEO Tom Rusin presents a check to NORD

Giving Spotlight: HomeServe USA Leadership and Employees Donate More Than $26,000 to NORD

“We are proud to support the efforts of important organizations like NORD, and to have an employee base so willing to give to the communities and charities that matter to them most.”… Read More

Taking on NYC and a Rare Disease: An Introduction


Sophia Hanson is a college student and has the rare disease, Lymphedema.  She is writing for NORD about the balancing act of going to… Read More

liam 6

Liam Cruz’ Diagnostic Journey

On July 27, 2011 the Cruz family welcomed a gorgeous baby boy, Liam, to their lives. Weighing 7lbs and 19 inches long, he was born at Greenwich Hospital in Greenwich, CT and discharged with… Read More