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Patient Assistance Programs

Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

Patient Assistance Programs

Other Resources

If NORD does not have a program for your disease, you may find one from one of these other patient assistance providers. More resources >

Are you eligible?

Eligibility criteria can vary by program but most of NORD’s patient assistance programs require the following:

  • Does the patient have an applicable diagnosis or physician referral?
  • Is the patient a legal US resident?
  • Does the patient meet NORD’s financial need criteria?

How it works

Maximum award levels vary by program. Awards are made for a calendar year, and patients may reapply for subsequent years. NORD will respond to your application within two business days.

How to get started

To apply for assistance you first need to locate the program below that best meets your situation. Then follow the related contact information.

Medication Specific Assistance Programs

NORD’s Medication Assistance Programs are designed to help patients who are without insurance or are underinsured obtain access to these medications. The following is a list of NORD’s current Medication Assistance Programs.

BUPHENYL® Medication Assistance (sodium phenylbuterate)

Conditions:Urea cycle disorders

Company:Hyperion Therapeutics

Contact:Reimbursement Hotline at 1-800-711-0811

Email:buphenyl@rarediseases.org

Fax:1-203-349-3277

CARNITOR® Medication Assistance (L-Carnitine or levo carnitine)

Conditions:Primary systemic carnitine deficiency, inborn errors of metabolism resulting in secondary carnitine deficiency, carnitine deficiency in patients with end-stage renal disease who are undergoing dialysis

Company:Sigma-Tau Pharmaceuticals, Inc.

Contact:1-855-653-3220

Email:carnitor@rarediseases.org

Fax:1-203-349-3279

CYSTADANE® Medication Assistance (betaine anhydrous for oral solution)

Conditions:Homocystinuria

Company:Rare Disease Therapeutics, Inc.

Contact:1-844-766-6538

Email:cystadane@rarediseases.org

Fax:1-203-349-3280

ITB® Therapy Assistance Lioresal® Intrathecal (baclofen injection)

Note:Closed to new applicants

Conditions:Severe spasticity

Company:Medtronic, Inc.

Contact:1-844-559-2656

Email:ITB@rarediseases.org

Fax:1-203-349-3281

MATULANE® Medication Assistance (procarbazine hydrochloride)

Conditions:Hodgkins lymphoma (Stage III and IV)

Company:Sigma-Tau Pharmaceuticals, Inc.

Contact:1-855-653-3220

Email:matulane@rarediseases.org

Fax:1-203-349-3282

Therakos Photopheresis Therapy

Conditions:Cutaneuos T-Cell lymphoma (CTCL)

Company:Therakos, Inc

Contact:1-877-241-7220

Email:therakos@rarediseases.org

Fax:1-203-428-4472

VSL#3 DS Medical Foods

Conditions:Ulcerative colitis or ILEAL pouch

Company:Sigma-tau Pharmaceuticals, Inc.

Contact:1-877-279-2459

Email:vsl3ds@rarediseases.org

Fax:1-203-349-8172