Mailing Address:
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone Number:
(203) 744-0100
Tollfree: (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax Number:
(203)798-2291
E-mail Contact:
orphan@rarediseases.org
Please note that we are unable to open unexpected e-mail attachments. If you must send us an attachment, please notify us first.
If you have questions related to providing care or accessing services for someone with a rare disease, write to: RN@rarediseases.org.
If you have a question related to genetic testing or the inheritance patterns of diseases, write to: genetic_counselor@rarediseases.org.
It will help us provide a faster response if you send your question to just one of the three e-mail addresses listed above.
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Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.