NORD’s Leadership Team
NORD is uniquely focused on purposefully elevating care, advancing research, and driving policy for the 30 million Americans living with rare diseases and their families. We have a long-standing and firmly rooted position in the rare disease community, based on nearly 40 years of positive impact, fueled by the breadth and depth of our experience and expertise.
We provide mentorship, education, and support to more than 300 disease-specific patient organizations, more than 15,000 individual advocates, as well as millions of individuals in the community.
Peter L. Saltonstall
President and Chief Executive Officer
Executive Vice President
Edward Neilan, M.D., Ph.D.
Chief Medical and Scientific Officer
Director of Education Programs
Director of Membership Services
Director of Research Programs
Vice President of Information Technology
Director of Policy and Regulatory Affairs
Director of Community Relations
Vice President of Finance
Vice President of Development
Jill L. Pollander, RN, MSN
Vice President of Patient Services
Vice President of Policy and Regulatory Affairs
Lisa (Phelps) Sarfaty
Vice President of Community Engagement
Vice President of Human Resources