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Resources for Medical Professionals

By raising awareness of rare diseases among physicians and other medical professionals, NORD strives to help patients obtain earlier diagnosis and appropriate treatment.


NORD Online Physician’s Guides

NORD Online Physician Guides are a free service of NORD and its medical advisors.

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The purpose of NORD Online Physician Guides is to provide a resource for clinicians about specific rare disorders to facilitate the timely diagnosis and treatment of their patients. Family physicians, pediatricians and other primary care providers play an important role in early identification and long-term management of patients with rare diseases. It is important for specialist and generalist alike to remain as current as possible in awareness of rare medical conditions. Visit the NORD Physician Guides website.


NORD PARTNERSHIP WITH FRONTLINE MEDICAL COMMUNICATIONS

 

 

NORD partners with Frontline Medical Communications to provide information about rare diseases to physicians and other healthcare professionals. Recent publications include the following. To obtain printed copies, write to Elizabeth Katz at ekatz@frontlinemedcom.com.

NORD COLLABORATION WITH MEDSCAPE

 

 

NORD collaborates with Medscape on editorial content related to rare diseases and the patient experience. Recent entries include an interview with William Gahl, MD, PhD, Director of the NIH Undiagnosed Diseases Network, on rare disease diagnosis challenges. http://www.medscape.com/partners/nord/public/nord

 

NORD OUTREACH TO MEDICAL STUDENTS

To assure that tomorrow's healthcare professionals have a solid foundation of knowledge about rare diseases, NORD works with student organizations to facilitate opportunities for student interaction with rare disease patients and caregivers. Inquiries related to this may be directed to: bhollister@rarediseases.org.

 

NORD INFORMATION FOR STUDENTS

Information about rare diseases for students preparing for healthcare careers:

 
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