You are here: Home / For Medical Professionals / Research Grants / Requests for Proposals

Requests for Proposals

The NORD Research Grant Program provides seed-money grants to academic scientists for scientific and/or clinical research. The hope is that these studies will ultimately lead to new diagnostics, treatments, and/or cures for rare diseases. NORD’s program provides grants for the study of diseases for which there are few other sources of funding.

Grants provided through the NORD program are made possible by donations from individuals and organizations to restricted research funds at NORD.

All medical decisions guiding the NORD Research Grant Program are made by NORD’s Medical Advisory Committee.


NORD Funding Opportunities for 2014

NORD is happy to announce six available grants in four diseases.

  • Two 2-year grants of up to $50,000 per grant, for scientific research studies and/or clinical research studies related to pseudomyxoma peritonei (PMP). See full RFP and abstract proposal template here.
  • One 2-year grant of up to $100,000 for scientific research studies and/or clinical research studies related to Autoimmune Polyglandular Syndrome Type 1 (APS Type 1). See full RFP and abstract proposal template here.
  • One 1-year grant of up to $30,000 for a clinical research study related to the diagnosis and/or treatment of Primary Orthostatic Tremor (POT). See full RFP and abstract proposal template here.
  • Two 2-year-grants of up to $93,500 per grant, for a scientific and/or clinical research study related to Alveolar Capillary Dysplasia with Misalignment of Pulmonary Veins (ACDMPV). See full RFP and abstract proposal template here.

Schedule for 2014 Grant Cycle:

July 10th, 2014

Deadline for preliminary abstract proposal submission.

Mid-August

NORD Medical Advisory Committee invites finalists to submit detailed proposals.

October 5th, 2014

Deadline for full proposals from finalists.

Mid-December

Winners selected and awards announced.

 


Funding Opportunities from NORD’s Member Organizations

NORD's member organizations are invited to post information on this page about their research funding opportunities. Researchers who have questions about programs listed below should contact the organization sponsoring the RFP.

NORD member organizations may submit funding opportunities for this page here.

Angelman Syndrome Foundation

Contact Name: Dan Harvey, research@angelman.org
Website: http://www.angelman.org/

Disease Name: Angelman Syndrome
Amount: up to $100,000 per year, $1,000,000 in grants available
Length of Study: One or Two Years
Application Deadline: October 15, 2014
Link to Guidelines and Application: http://www.angelman.org/research/1-million-for-angelman-syndrome-research/

National Ataxia Foundation (NAF)

Contact Name: Sue Hagen, susan@ataxia.org
Website: https://www.ataxia.org/

Disease Name: Ataxia
Amount: Up to $15,000 but promising proposals up to a maximum of $30,000 will be considered for early or pilot phases of studies and ongoing investigations
Length of Study: One Year
Letter of Intent Deadline: July 15, 2014
Application Deadline: August 15, 2014
Link to Guidelines and Application: http://www.ataxia.org/pdf/2015_Research_Applications/Research_Grant_Application_Form_2015.pdf

NBIA Disorders Association

Contact Name: Patricia Wood, pwood@NBIAdisorders.org
Website: http://www.nbiadisorders.org/

Disease Name: Pantothenate Kinase-Associated Neurodegeneration (PKAN)
Amount: Not to exceed $45,000 for one year (with exceptions if warranted for multi-year funding)
Length of Study: One Year
Application Deadline: September 14, 2014
Link to Guidelines and Application: http://www.nbiadisorders.org/research/grants-program-funding-opportunities

Lymphangiomatosis & Gorham's Disease Alliance (LGDA)

Contact Name: Jack Kelly- jkelly@lgdalliance.org or Nupur Garg, PhD- ngarg@lmiresearch.org
Website:  http://www.lgdalliance.org/

Disease Name: Generalized lymphatic anomaly (lymphangiomatosis) & Gorham-Stout Syndrome
Amount: There are no pre-determined figures governing these parameters.
Length of Study: The period of award and level of funding is unique to each funded project.
Link to Guidelines and Application: http://www.lmiresearch.org/apply-for-funding/ or http://www.lgdalliance.org/research/research-partners-initiatives/

Children's Cardiomyopathy Foundation

Contact name: Dara Schwam dschwam@childrenscardiomyopathy.org email for RFP: yue@childrenscardiomyopathy.org
Website: http://www.childrenscardiomyopathy.org/

Disease Name: Pediatric Cardiomyopathy (Dilated, Hypertrophic, Restrictive or Arrhythmogenic Right Ventricular Cardiomyopathy)
Amount: Up to US $50,000 (total direct costs only)
Length of Study: One Year
Letter of Intent Deadline: June 13, 2014, 5:00PM
Application Deadline: September 5. 2014 5:00PM
Link to Guidelines and Application: http://www.childrenscardiomyopathy.org/site/grants.php

Histiocytosis Association

The Histiocytosis Association has announced the launch of its 2014 Request for Research Proposals for grants to promote better treatments and a cure for histiocytic disorders.

Contact name: Amie Simpson, grants@histio.org
Website: http://www.histio.org/

Disease Name: Histiocytosis
Amount: US $50,000
Length of Study: One Year
Letter of Intent Deadline: July 1, 2014, 11:55pm
Link to Guidelines and Application: http://www.histio.org/RFRP?erid=727650&trid=acec6714-65e2-4b58-8ca4-b57373423a2a

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .