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Requests for Proposals

The NORD Research Grant Program provides seed-money grants to academic scientists for scientific and/or clinical research. The hope is that these studies will ultimately lead to new diagnostics, treatments, and/or cures for rare diseases. NORD’s program provides grants for the study of diseases for which there are few other sources of funding.

Grants provided through the NORD program are made possible by donations from individuals and organizations to restricted research funds at NORD.

All medical decisions guiding the NORD Research Grant Program are made by NORD’s Medical Advisory Committee.


NORD Funding Opportunities for 2014

NORD will post announcements related to the 2014 RFPs in late March.


Funding Opportunities from NORD’s Member Organizations

NORD's member organizations are invited to post information on this page about their research funding opportunities. Researchers who have questions about programs listed below should contact the organization sponsoring the RFP.

NORD member organizations may submit funding opportunities for this page here.

Alpha 1 Foundation

Contact Name: David Fernandez
Contact Email: dfernandez@alpha-1foundation.org
Telephone: (877) 228-7321 ext. 242
Website:  http://alpha-1foundation.org/

Letter of Intent Deadline: September 20, 2013, 05:00PM EDT
Application Deadline: Feb 14, 2014 05:00 PM EDT
Link to Guidelines and Application: http://alpha-1foundation.org/research-grant-opportunities/

The Alpha 1 Foundation is offering six in-cycle grants.

Name of Grant: Bridge Grant
Amount: Maximum of $25,000 may be requested.
Length of Study: Up to 1 year of support is available.

Name of Grant: Pilot and Feasibility Grant
Amount: Maximum of $40,000 may be requested.
Length of Study: Up to 1 year of support is available.

Name of Grant: Postdoctoral Research Fellowship Grant
Amount: Maximum of $50,000 per year may be requested.
Length of Study: Up to 2 years of support is available.

Name of Grant: Research Grant
Amount: Maximum of $100,000 per year may be requested.
Length of Study: Up to 2 years of support is available.

Name of Grant: Scientific Meeting Sponsorship Grant
Amount: Grants are generally funded at the $5,000 level. The funds are restricted for use during a specified period of time.

Name of Grant: Travel Grant
Amount: Grants are generally funded at a level of $1,000. The funds are restricted for use during a specified period of time.

Applications are now being accepted for the Gordon L. Snider Scholar Award, a research grant named in memory of a great researcher and longtime Board member who helped to create the Foundation’s research program.  Applications are due March 28More.

For more information on any of these grants, please visit this website.

Alport Syndrome Foundation (ASF)

The ASF, Macquarie, Pedersen Family and the Kidney Foundation of Canada (KFOC) have announced the availability of funding for basic science and clinical research on the natural history, biochemical basis, and treatment of Alport syndrome. Two research projects will be selected for funding, totaling $100,000 USD each.  Applications are due March 17.  More.

Friedreich’s Ataxia Research Alliance (FARA)

FARA is seeking applications for the Phillip Bennett and Kyle Bryant Translational Research Award  that focuses on pre-clinical and clinical investigations that will advance treatments for FA.  The deadline for letters of intent is May 15. More.

Lymphangiomatosis & Gorham's Disease Alliance (LGDA)

Contact Name: Jack Kelly- jkelly@lgdalliance.org or Nupur Garg, PhD- ngarg@lmiresearch.org
Website:  http://www.lgdalliance.org/

Disease Name: Generalized lymphatic anomaly (lymphangiomatosis) & Gorham-Stout Syndrome
Amount: There are no pre-determined figures governing these parameters.
Length of Study: The period of award and level of funding is unique to each funded project.
Link to Guidelines and Application: http://www.lmiresearch.org/apply-for-funding/ or http://www.lgdalliance.org/research/research-partners-initiatives/

 
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