Requests for Proposals
NORD Funding Opportunities for 2013
NORD is offering the following seed grant funding opportunities in 2013:
- Adult Primary Lateral Sclerosis (PLS)
- Dubowitz Syndrome (DS)
- Glycine Encephalopathy, aka Nonketotic Hyperglycinemia (NKH)
- Growth Failure in Children with Cardiofaciocutaneous Syndrome (CFC)
- Post-Orgasmic Illness Syndrome (POIS)
- Pseudomyxoma Peritonei (PMP) (Two grants)
A letter of intent is due to NORD by May 15, 2013. Invitations to submit a full proposal will be sent in early July and these full proposals will be due by September 11, 2013.
The NORD Research Grant Program provides seed-money grants to academic scientists for scientific and/or clinical research. The hope is that these studies will ultimately lead to new diagnostics, treatments, and/or cures for rare diseases. NORD’s program provides grants for the study of diseases for which there are few other sources of funding.
Grants provided through the NORD program are made possible by donations from individuals and organizations to restricted research funds at NORD.
All medical decisions guiding the NORD Research Grant Program are made by NORD’s Medical Advisory Committee, which is chaired by Sami I. Said, MD, distinguished Professor of the State University of New York. The program is administered by Stefanie Putkowski, RN, of the NORD staff.
Funding Opportunities from NORD’s Member Organizations
NORD's member organizations are invited to post information on this page about their research funding opportunities. Researchers who have questions about programs listed below should contact the organization sponsoring the RFP.
NORD member organizations may submit funding opportunities for this page here.
Children’s Cardiomyopathy Foundation (CCF)
Disease name: Pediatric cardiomyopathy
Amount: range of US$25,000 to US$50,000
Length of study: 1 year
Letter of Intent deadline: June 14
Guidelines and application: http://www.childrenscardiomyopathy.org/site/grants.php
The Global Foundation for Peroxisomal Disorders
Contact Name: Mousumi Bose
Contact Email: grants@thegfpd.org
Telephone: 410-274-3858
Fax: 918-516-0227
Website: http://www.thegfpd.org
Disease Name: Peroxisomal Biogenesis Disorder - Zellweger Spectrum Disorder
Amount: Up to $25,000 annually
Length of Study: Up to 2 years
Application Deadline: Jun 14, 2013 09:00 PM
Link to Guidelines and Application: http://www.thegfpd.org/for-doctors/grants
The Histiocytosis Association
Email: grants@histio.org
Organization's Website: http://www.histio.org
Disease Name: Histiocytic disorders
Amount: Up to $50,000
Application Deadline: July 31, 2013
Guidelines and Application: http://www.histio.org/RFRP
International Rett Syndrome Foundation (IRSF)
Phone: 917-267-4504
E-mail: jascano@rettsyndrome.org
Web site: www.rettsyndrome.org
Disease name: Rett syndrome
Amount: up to $300,000 per year
Length of study: 1 or 2 years
Letter of Intent deadline: Various (see website for complete information)
Application deadline: Various (see website for complete information)
Guidelines and application: Complete Information & Guidelines
Lowe Syndrome Association
Contact Name: Christine Knight, Director, Medical and Scientific Advisory Board
Email: Christineknight22@yahoo.com
Organization's Website: http://www.lowesyndrome.org/
Disease Name: Lowe syndrome/OCRL/Oculocerebrorenal Syndrome
Amount: Up to $25,000
Length of Study: One year
Application Deadline: Jun 15, 2013 11:55 PM
Guidelines and Application: http://www.lowesyndrome.org/Research/Grants/index.html
National Ataxia Foundation
Contact Name: Sue Hagen
Telephone: 763-553-0020
Fax: 763-567-0167
Contact Email: naf@ataxia.org
Organization's Website: http://www.ataxia.org
Disease Name: Hereditary and Sporadic Ataxia
Amount: $15,000-$30,000
Length of Study: One Year
Letter of Intent Deadline: Jul 15, 2013 12:00 AM
Application Deadline: Aug 15, 2013 12:00 AM
Link to Guidelines and Application: http://www.ataxia.org/research/ataxia-research-grants.aspx
The National Ataxia Foundation (NAF) is committed to funding the best science relevant to hereditary and sporadic types of ataxia in both basic and translational research. Five Research programs including Seed Money, Post-Doc Fellowship Awards and Young Investigators awards are available.
The Scleroderma Foundation
Contact Name: Tracey O’Connell Sperry
Telephone: 978-463-5843
Fax: 978-463-5809
Amount: Applicants may request up to $500,000 for 2 years.
Letter of Intent Deadline: September 2, 2013 at 5:00PM EST
Application Deadline: October 15, 2013
View Guidelines and Application
The Foundation is seeking applications for collaborative basic, translational or clinical research projects involving two or more Scleroderma Foundation Centers at different institutions. Letters of intent are due Sept. 2.
Soft Bones, Inc.
Contact Name: Jane Castello
Contact Email: jane@softbones.org
Disease Name: Hypophosphatasia
Amount: $25,000
Application Deadline: July 1, 2013
View Guidelines and Application
This is a onetime seed grant of $25,000 for basic or clinical research directly related to hypophosphatasia.
