The Natural History Of Metachromatic Leukodystrophy
– The Team
Pamela K. Gavin, MBA
Chief Strategy Officer at NORD
Aliza Fink
Associate Director of Research Programs at NORD
Josey Hensley, RN, CCRN
Clinical Research Study Coordinator
Family and Caregiver Advisory Committee Members
Sarah Cornell – MLD parent
Derek Gavin – MLD parent
Maria Kefalas, PhD – MLD parent
Sonal Patel, MD – MLD parent
Susan Sullivan – MLD parent
Industry and Clinician Advisory Committee Members
Laura Adang, MD, PhD – Children’s Hospital of Philadelphia
Giovanna Devercelli, PhD – Takeda
Maria Escolar, MD – Children’s Hospital of Pittsburgh
Natalia Gomez-Ospina, MD, PhD – Pediatric Translational Medicine, Stanford University
Mike Hale, PhD – Takeda
Eric J. Mallack, MD –Weill-Cornell Medicine
Leslie Meltzer, PhD – Orchard
Gary Romano, MD, PhD – Passage Bio
Dorothy Romanus, MSc, PhD – Takeda
David Whiteman, MD – Takeda