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Events


All NORD and Member Organization Events

Organizational members who would like to post an event on this page may submit it here.

EDNF Learning Conference from Aug 01, 2013 12:00 AM to Aug 03, 2013 12:00 AM
The EDNF will hold its 2013 Learning Conference August 1-3, 2013 in Providence, RI.
TNA 9th National Conference from Oct 04, 2013 12:00 AM to Oct 06, 2013 12:00 AM San Diego,
The TNA will hold its 9th National Conference “Empowering Patients Through Education” on Oct 4-6, 2013 in San Diego, CA
CBI Orphan Drug Innovation Summit 2013 from Jul 17, 2013 12:00 AM to Jul 18, 2013 12:00 AM Philadelphia,
Join CBI as it hosts a conference, July 17-18, on Next Generation Drug Development and Commercialization Strategies
CR&T 7th International Patient Symposium On Myeloproliferative Diseases Nov 06, 2013 12:00 AM New York, New York,
The Cancer Research and Treatment Fund brings you their 7th international patient symposium on November 6
Living with Aplastic Anemia, MDS, or PNH - San Francisco Jul 20, 2013 from 08:30 AM to 05:00 PM San Francisco, California,
Join the Aplastic Anemia and MDS International Foundation in San Francisco on July 20th for this one-day regional conference.
MDS Webinar: The Good, Bad, and Ugly Jul 11, 2013 from 03:00 PM to 04:30 PM Online,
During this webinar on July 11th, Dr. Michaelis will focus on helping you understand new and emerging diagnostic procedures and prognostic models.
PNH Webinar: Treating PNH in 2013 and Beyond Jul 25, 2013 from 03:00 PM to 04:30 PM Online,
On July 25th, participants in this training will gain an understanding of paroxysmal nocturnal hemoglobinuria (PNH) in 2013 and beyond.
MDS Webinar: MDS: What’s Your Risk? Understanding Low and High-Risk MDS Aug 01, 2013 from 03:00 PM to 04:30 PM Online,
On August 1st, this webinar will use a combination of lecture and case studies to present the most current thinking on the treatment of higher-risk MDS.
Aplastic Anemia Webinar: Aplastic Anemia: What You Need to Know Aug 08, 2013 from 03:00 PM to 04:30 PM Online,
On August 8th, this session will use a combination of lecture and case studies to present the most current thinking on the treatment of aplastic anemia.
Treating MDS in 2013: Medical Experts Share the Latest on the Diagnosis, Treatment, and Management of MDS Oct 11, 2013 from 09:00 AM to 12:00 PM Brookfield, Wisconsin,
Join the Aplastic Anemia & MDS Foundation on October 11th for a free educational program for MDS patients and family members.
Skin Manifestations in Scleroderma Jul 12, 2013 from 10:30 AM to 11:30 AM Webinar,
On July 12, Dr. Lorinda Chung will focus on how scleroderma affects the body, and most specifically, skin manifestations in scleroderma patients.
What's New in the World of Scleroderma Sep 17, 2013 from 10:00 AM to 11:00 AM Webinar,
Sept. 17th will be the next webinar in a series designed to help patients in the scleroderma community.
Turner Syndrome Society of the U.S. Annual Conference from Jul 12, 2013 12:00 AM to Jul 14, 2013 12:00 AM Westin Galleria in Dallas, Texas,
The Turner Syndrome Society of the US would like to invite you to the 26th Annual TSSUS Conference on July 12-14, 2013.
35th Annual Association for Glycogen Storage Disease Patient/Family/Professional Conference from Sep 19, 2013 11:00 PM to Sep 20, 2013 11:00 PM Embassy Suites Raleigh-Durham/Research Triangle,
The Annual Association for Glycogen Storage Disease Patient/Family/Professional Conference will be held on September 20-21, 2013
2nd ATP1A3 Symposium in Disease from Sep 23, 2013 10:00 AM to Sep 24, 2013 06:00 PM Catholic University School of Medicine, Rome, Italy,
The aim of the Symposium on Sept. 23-24 is to present the further progress of the research on Alternating Hemiplegia of Childhood.
2013 ASF Biennial Conference from Jul 23, 2013 12:00 AM to Jul 26, 2013 12:00 AM Orlando, FL,
The 2013 ASF Biennial Conference will be held July 23-26 in Orlando, FL.
Immune Deficiency Foundation (IDF) National Conference from Jun 27, 2013 12:00 AM to Jun 29, 2013 12:00 AM Baltimore, MD,
The IDF will hold its 2013 National Conference June 27-29 in Baltimore, MD.
Living with Aplastic Anemia, MDS, or PNH - Cleveland Jun 22, 2013 from 08:30 AM to 05:00 PM Cleveland, Ohio,
Join the Aplastic Anemia and MDS International Foundation in Cleveland on June 22nd for this one-day regional conference.
Aplastic Anemia Virtual Meeting Jul 20, 2013 from 12:00 PM to 05:45 PM N/A,
This virtual meeting on July 20th will include two sessions on aplastic anemia.
The Cardio-Facio-Cutaneous International Family Conference from Jul 31, 2013 12:00 AM to Aug 03, 2013 12:00 AM Orlando, FL,
The Cardio-Facio-Cutaneous International Family Conference will be held July 31-August 3 in Orlando, FL

 
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