36th Annual Association for Glycogen Storage Disease Patient/Family/Professional Conference
Sep 20, 2014 06:30 PM
The focus of the AGSD Conference is meeting other people and families affected by GSD, gaining a better understanding of the GSDs and their implications, and learning about the latest research findings and upcoming studies from GSD experts from the U.S. and other countries. The medical professionals who attend are wonderful about giving of their time to mingle with parents and GSD affected individuals to discuss individual issues, research findings, or just lend encouragement and support. We understand that having a family member with a rare medical condition is very difficult, so by gathering each year, we affirm and support each other, and form some great friendships. There is no pretense, just openness and sharing. The kids love to meet other kids with their same disease, and we parents can't get enough of being with others 'who've been there.Along with our annual 1-mile Fun Run/Walk, we will be holding a Silent Auction at the 2014 AGSD Conference.