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Events


All NORD and Member Organization Events

Organizational members who would like to post an event on this page may submit it here.

For information about NORD's Portraits of Courage Celebration please visit the event information page.

Hypoparathyroidism Regional Meeting 2014: Dallas Apr 25, 2014 from 09:00 AM to 03:00 PM Dallas, TX,
NORD will host a regional patient meeting for patients and families affected by hypoparathyroidism on April 25, 2014 in Dallas, TX.
Hypoparathyroidism Regional Meeting 2014: Miami May 17, 2014 from 09:00 AM to 03:00 PM Miami, FL ,
NORD will host a regional patient meeting for patients and families affected by hypoparathyroidism on May 17th in Miami, FL.
Atypical Hemolytic Uremic Syndrome (aHUS) Regional Meeting 2014: Jersey City from May 30, 2014 12:00 AM to May 31, 2014 12:00 AM Jersey City, NJ,
NORD will host a regional patient meeting for patients and families affected by atypical hemolytic uremic syndrome (aHUS) on May 30-31 in Jersey City, NJ.
Atypical Hemolytic Uremic Syndrome (aHUS) Regional Meeting 2014: Nashville from Jun 27, 2014 12:00 AM to Jun 28, 2014 12:00 AM TBA,
NORD will host a regional patient meeting for patients and families affected by Atypical Hemolytic Uremic Syndrome (aHUS) on June 27-28th in Nashville, TN
Rare Kidney Stone Patient Meeting & Walk from Jun 27, 2014 06:00 PM to Jun 29, 2014 12:00 PM Ann & Robert H. Luri Children's Hospital, Chicago, Illinois,
The Oxalosis & Hyperoxaluria Foundation (OHF)hosts the 2014 Patient Meeting & Walk in Chicago Jun 27-29, 2014.
7th Annual FMDSA Conference May 16, 2014 from 05:30 PM to 05:00 PM Cleveland, OH,
The 7th Annual Fibromuscular Dysplasia Society of America Conference will be held in Cleveland, OH, May 16-17.
PRISMS 8th International Conference from Jul 31, 2014 12:00 AM to Aug 03, 2014 12:00 AM St. Louis, MO,
PRISMS 8th International Conference, “Building Bridges of Hope” will be held July 31-Aug 3 in St. Louis, MO.
PSC Partners 10th Annual Conference in Denver from Apr 25, 2014 08:00 AM to Apr 27, 2014 12:00 AM Denver, Colorado,
PSC Partners Seeking a Cure announces its tenth annual conference for primary sclerosing cholangitis (PSC) in Denver, Colorado April 25-27, 2014.
2014 International Pulmonary Hypertension Conference from Jun 20, 2014 12:00 AM to Jun 22, 2014 12:00 AM Indianapolis, IN,
The 2014 International Pulmonary Hypertension Conference will be held in Indianapolis, Indiana from June 20-22, 2014.
PNH Regional Meeting 2014: Denver from Jun 20, 2014 12:00 AM to Jun 21, 2014 02:35 PM TBA,
NORD will host a patient meeting for patients and families affected by PNH (paroxysmal nocturnal hemoglobinuria) on June 20-21 in Denver, CO.
PNH Regional Meeting: Westchester from Oct 24, 2014 12:00 AM to Oct 25, 2014 12:00 AM TBA,
NORD will host a regional patient meeting for patients and families affected by paroxysmal nocturnal hemoglobinuria (PNH), in Westchester, NY on October 24-25.
HHT Foundation International from Jul 18, 2014 12:10 PM to Jul 20, 2014 12:10 PM Santa Clara, CA,
The Foundation has announced that its 17th National Patient and Family Conference will be held July 18-20, 2014 in Santa Clara, CA.
2014 MDF Annual Conference from Sep 12, 2014 12:00 AM to Sep 14, 2014 12:00 AM WA, DC,
The annual patient conference for myotonic dystrophy patients, researchers, physicians and industry will be held from Sept 12-14, 2014.
PNH Regional Meeting 2014: Raleigh May 09, 2014 from 07:00 PM to 03:00 PM Embassy Suites Raleigh-Durham Airport/Brier Creek 8001 Arco Corporate Dr. Raleigh, NC 27617,
NORD will host a public meeting for those affected by paroxysmal nocturnal hemoglobinuria (PNH) in Raleigh, NC on May 9-10.
PNH Regional Meeting 2014: Seattle May 16, 2014 from 07:00 PM to 03:00 PM The Westin Seattle 1900 5th Avenue Seattle, WA 98101 ,
NORD will host a patient meeting for PNH patients and families in Seattle, WA on May 16-17.
PNH Regional Meeting 2014: Chicago from Sep 12, 2014 12:00 AM to Sep 13, 2014 12:00 AM TBA,
NORD will host a regional patient meeting for patients and families affected by paroxysmal nocturnal hemoglobinuria (PNH) in Chicago, IL on Sept. 12-13.
PNH Regional Meeting 2014: San Diego from Nov 14, 2014 12:00 AM to Nov 15, 2014 12:00 AM TBA,
NORD will host a regional patient meeting for patients and families affected by paroxysmal nocturnal hemoglobinuria (PNH) in San Diego, CA on Nov. 14-15.
Role of Immune Tolerance Induction Public Workshop Jun 09, 2014 from 08:00 AM to 05:00 PM White Oak Conference Center 10903 New Hampshire Ave Building 31, Rm 1503 Silver Spring, MD 20993,
The FDA and NORD are co-hosting this public workshop on June 9, 2014 at the White Oak Conference Center in Silver Springs, MD.
1st Lymphangiomatosis & Gorham's Disease Patient-Family Conference from Jun 13, 2014 12:00 PM to Jun 14, 2014 09:00 PM Sheraton Suites Hotel - Dallas,
The Lymphangiomatosis & Gorham's Disease Alliance (LGDA) will hold its inaugural Patient-Family Conference June 13 & 14, 2014, at the Sheraton Suites Market Center in Dallas.
Moebius Syndrome Foundation from Jul 18, 2013 01:00 PM to Jul 20, 2013 01:00 PM Bethesda, MD,
The next Moebius Syndrome Conference will take place July 18-20, 2014 in Bethesda, MD.

 
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