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Events


All NORD and Member Organization Events

Organizational members who would like to post an event on this page may submit it here.

Atypical Hemolytic Uremic Syndrome (aHUS) Regional Meeting 2014: San Antonio from Nov 07, 2014 01:00 AM to Nov 08, 2014 01:00 AM San Antonio,
NORD will host a regional patient meeting for patients and families affected by atypical hemolytic uremic syndrome (aHUS)on November 7-8, 2014 in San Antonio, TX.
CurePSP Celebrates 50 Years of Research Oct 17, 2014 from 07:00 PM to 09:00 PM Baltimore, MD,
CurePSP will celebrate 50 years of research at its Milestones and Horizons event Oct 17 in Baltimore, MD.
2nd Annual International ECD Medical Symposium Sep 18, 2014 12:00 AM Bethesda, MD,
The ECD Global Alliance will hold the 2nd Annual International ECD Medical Symposium scheduled for September 18 in Bethesda, MD.
IDF Walk for Primary Immunodeficiency from Sep 01, 2014 12:00 AM to Dec 31, 2014 12:00 AM Boston, Chicago, Houston, Los Angeles, New York City, and Philadelphia,
IDF will host a Walk for Primary Immunodeficiency in various locations across the country.
2014 FOD/OAA National Metabolic Family Conference from Jul 25, 2014 09:00 AM to Jul 26, 2014 06:00 PM 1700 Jefferson Davis Highway Arlington VA 22202,
The FOD Family Support Group will be held July 25-26 at the Crystal Gateway Marriott in Arlington, VA.
Northern California Autoinflammatory Picnic Jul 26, 2014 from 12:00 PM to 03:00 PM Howarth Park Lower Oak Picnic Areas 1 & 2 630 Summerfield Rd. Santa Rosa, CA 95405 ,
The Autoinflammatory Alliance is hosting a picnic on July 26th in Santa Rosa, CA, for patients and families affected by autoinflammatory disease.
2nd Annual International ECD Medical Symposium from Sep 17, 2014 07:00 PM to Sep 19, 2014 02:00 PM Double Tree Hotel 8120 Wisconsin Avenue Bethesda, MD 20814,
The 2nd Annual International ECD Medical Symposium is scheduled for September 17-19 in Bethesda, Maryland.
14th International Fragile X Conference from Jul 16, 2014 01:00 AM to Jul 20, 2014 01:00 AM Orange County, CA,
The 14th International Fragile X Conference will be held July 16-20 in Orange County, CA.
Joyce Niblack Memorial Conference on Myeloproliferative Neoplasms from Feb 19, 2015 01:00 AM to Feb 22, 2015 01:00 AM Scottsdale, AZ,
The MPN Education Foundation and the Mayo Clinic are hosting this patient-doctor conference in Scottsdale, AZ Feb 21-22, 2015.
PRISMS 8th International Conference from Jul 31, 2014 01:00 AM to Aug 03, 2014 01:00 AM St. Louis, MO,
PRISMS 8th International Conference, “Building Bridges of Hope” will be held July 31-Aug 3 in St. Louis, MO.
PNH Regional Meeting: Westchester from Oct 24, 2014 01:00 AM to Oct 25, 2014 01:00 AM TBA,
NORD will host a regional patient meeting for patients and families affected by paroxysmal nocturnal hemoglobinuria (PNH), in Westchester, NY on October 24-25.
HHT Foundation International from Jul 18, 2014 01:10 PM to Jul 20, 2014 01:10 PM Santa Clara, CA,
The Foundation has announced that its 17th National Patient and Family Conference will be held July 18-20, 2014 in Santa Clara, CA.
2014 MDF Annual Conference from Sep 12, 2014 01:00 AM to Sep 14, 2014 01:00 AM WA, DC,
The annual patient conference for myotonic dystrophy patients, researchers, physicians and industry will be held from Sept 12-14, 2014.
PNH Regional Meeting 2014: Chicago from Sep 12, 2014 01:00 AM to Sep 13, 2014 01:00 AM TBA,
NORD will host a regional patient meeting for patients and families affected by paroxysmal nocturnal hemoglobinuria (PNH) in Chicago, IL on Sept. 12-13.
PNH Regional Meeting 2014: San Diego from Nov 14, 2014 01:00 AM to Nov 15, 2014 01:00 AM TBA,
NORD will host a regional patient meeting for patients and families affected by paroxysmal nocturnal hemoglobinuria (PNH) in San Diego, CA on Nov. 14-15.
2nd International Erdheim-Chester Disease Medical Symposium from Sep 19, 2014 01:00 AM to Sep 20, 2014 01:00 AM Bethesda, MD,
The 2nd International Erdheim-Chester Disease (ECD) Medical Symposium will be held Sept 18 at the NIH in Bethesda, MD.
NHF 66th Annual Meeting, “Nothing About Us Without Us” from Sep 18, 2014 01:00 AM to Sep 20, 2014 01:00 AM Washington, DC,
The NHF will hold its 66th Annual Meeting, “Nothing About Us Without Us” Sept 18-20 in Washington, DC.
Atypical Hemolytic Uremic Syndrome (aHUS) Regional Meeting 2014: San Francisco from Sep 05, 2014 01:00 AM to Sep 06, 2014 01:00 AM San Francisco,
NORD will host a regional patient meeting for patients and families affected by atypical hemolytic uremic syndrome (aHUS) from Sept 5-6 in Sn Francisco, CA.
Ehlers-Danlos National Foundation CME Program Sep 15, 2014 from 01:00 AM to 10:35 AM Baltimore, MD,
The EDNF Center for Clinical Care and Research at Greater Baltimore Medical Center will host a CME program for physicians on Sept 15.
11th Moebius Syndrome Conference from Jul 18, 2014 01:00 AM to Jul 20, 2014 01:00 AM North Bethesda, MD,
The 11th Moebius Syndrome Conference will be held July 18-20 in North Bethesda, MD.

 
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