The National Organization for Rare Disorders (NORD)


Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office

NORD's Washington OfficeRead about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

NORD Medical Advisory Committee

  • Sami I. Said, M.D. (Chair)
    State University of New York
    Stony Brook Health Science Center

  • Frederick Askari, M.D., Ph.D.
    The University of Michigan Medical Center

  • Garrett E. Bergman, M.D.
    Octogen Corporation

  • Roscoe O. Brady, M.D.
    National Institutes of Health

  • Robert Campbell, Jr., M.D.
    The University of Texas
    Health Science Center at San Antonio

  • Martha Carlson, M.D., Ph.D.
    The University of Michigan Health System

  • Leslie T. Cooper, Jr., MD
    Mayo Clinic, Rochester, MN

  • Mervyn L. Elgart, M.D.
    University Dermatology Associates, Washington, D.C.

  • Pamela F. Gallin, MD, FACS
    Columbia-Presbyterian Medical Center, New York City

  • James F. Leckman, M.D.
    Yale University School of Medicine

  • Mary Jean Sawey, Ph.D.
    Temple University

  • Mendel Tuchman M.D.
    Children's National Medical Center

  • Susan Winter, M.D.
    Valley Children's Hospital, Madera, California

  • Doris T. Zallen, PhD
    Virginia Tech University

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Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

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Last modified Tuesday, August 28, 2007