AKU Society of North America

The AKU Society of North America is a non-profit organization that focuses on improving the quality of life of alkaptonuria (AKU) patients and their families by providing education, resources, and opportunities for interaction of patients, families, and physicians associated with AKU. They aim to raise funds for support, research, education, and meetings to advance knowledge of the disease and possibilities for treatment of AKU. AKU is an inherited, rare, genetic disorder of the metabolism. It causes homogentisic acid to build up in the blood and tissues and most often leads to joint pain, cartilage damage, and kidney stones.