Children’s Tumor Foundation

The Children’s Tumor Foundation (CTF) Ending Neurofibromatosis Through Research, formerly known as the National Neurofibromatosis Foundation, is a not-for-profit, voluntary organization dedicated to improving the well-being of individuals and families affected by neurofibromatosis type I (NF1) and type II (NF2). NF1 is a rare inherited disorder characterized by the development of multiple benign tumors on the covering of nerve fibers and the appearance of brown spots and freckles on the skin. NF2 is a rare inherited disorder characterized by the development of benign tumors on both auditory nerves and in other areas of the body. Established in 1978, the foundation is dedicated to sponsoring scientific research aimed at finding the causes and cures for the neurofibromatoses, promoting the development of clinical activities, creating public awareness, and providing patient support services. The mission of CTF is to drive research, expand knowledge and advance care for the NF community, and their vision is to End NF.