Chromosome 18 Registry & Research Society

The Chromosome 18 Registry & Research Society is an advocacy organization dedicated to maintaining a registry of individuals affected by chromosome 18 abnormalities; educating affected families and the public; and encouraging, conducting, and publishing research in areas impacting affected families. The society seeks to link affected families and their physicians to the research community. Established in 1990, the Chromosome 18 Registry & Research Society promotes patient advocacy, provides phone support to affected families, offers appropriate referrals, promotes research and offers educational and support materials. Information is found in our web site, list serves, memos, newsletter, reports, scientific research updates and brochures.