International Patient Organization for Primary Immunodeficiencies
About International Patient Organization for Primary Immunodeficiencies
The members of the International Patient Organization for Primary Immunodeficiencies (IPOPI) are national patient organizations for the primary immunodeficiencies (PIDs). These are inherited disorders in which part of the body’s immune system is missing or doesn’t function properly. IPOPI’s purpose is to unite the experience, expertise, resources, and influence of its members in order to achieve worldwide improvement in the care and treatment of individuals with primary immunodeficiency disorders. It strives to be responsive on an international level to the issues of greatest concern to its members. These issues include blood product safety, improving patient diagnosis, gene therapy, immunoglobulin therapy, patient organization development, patient and professional education, and prospects from mapping the human genome.
Related Rare Diseases:
- Complete DiGeorge Syndrome
- CARD9 Deficiency
- WHIM Syndrome
- Leukocyte Adhesion Deficiency Syndromes
- Autosomal Dominant Hyper IgE Syndrome
- Hyper IgM Syndromes
- Autosomal Recessive Hyper IgE Syndrome
- Common Variable Immune Deficiency
- X linked Lymphoproliferative Syndrome
- Chronic Granulomatous Disease
- Chediak Higashi Syndrome
- Severe Combined Immunodeficiency
- WAS Related Disorders
- Agammaglobulinemia
- Predisposición a una enfermedad fúngica invasora por deficiencia de CARD9
- Enfermedad granulomatosa crónica
- Síndrome de WHIM