Melorheostosis Association

The Melorheostosis Association is a 501(c)(3) not-for-profit organization dedicated to finding the cause, treatments and cure for melorheostosis. Our focus is on promoting greater awareness and understanding of this progressive disease and its manifestations through education, research, communication and advocacy efforts on behalf of those affected by it as well as those dedicated to alleviating it. Melorheostosis is a rare and progressive disorder characterized by hyperostosis (thickening) of the cortical bone.