NDI (Nephrogenic Diabetes Insipidus) Foundation

The NDI (Nephrogenic Diabetes Insipidus) Foundation is a self-help organization dedicated to providing information and support to individuals and families affected by diabetes insipidus. This rare metabolic disease is characterized by a deficiency of the hormone vasopressin (anti-diuretic hormone [ADH]), which is produced in the posterior lobe of the pituitary gland. Excessive thirst and urination are the major symptoms of this disorder. The NDI Foundation’s mission is to share information among affected families. Established in 1995 and consisting of 20 members and one chapter, the group publishes two newsletters each year and expects to publish a pamphlet directed toward caregivers and schools. The organization coordinates an active networking program and telephone support system.