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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Rare Diseases Clinical Research Network


Address

University of South Florida, Pediatrics Epidemiology Center
3650 Spectrum Boulevard, Suite 100
Tampa, FL 33612

Phone

8133969501

Fax

8139105997

800 Number

8665339104

Description

Rare Diseases Clinical Research Network (RDCRN) is a non-profit organization that is funded by the National Institutes of Health (NIH) and the Office for Rare Diseases Research (ORDR). Their goal is to contribute to the research and treatment of rare diseases by working together to identify biomarkers for disease risk, disease severity and activity, and clinical outcome, while also encouraging the develpment of new approaches to diagnosis, prevention, and treatment.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.