Trichorhinophalangeal Syndrome Association

The Trichorhinophalangeal Syndrome Association (TRPSA) offers support, compassion, and informational materials to those with trichorhinophalangeal syndrome, an extremely rare inherited multisystem disorder with three types. TRPSA’s mission includes increasing understanding of TRPS among patients, families and physicians. When possible, it offers family connections. Live online chats are also available. The goal is to increase awareness in the medical community, as wlel as the general population, in the hope that more treatments and possibly a cure might be found in the future.