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NORD

Upcoming Events

January 2016

Advocacy 101 Webinar

January 28 @ 3:00 pm - 4:00 pm
NORD Headquarters,
55 Kenosia Ave.
Danbury, CT 06810 United States
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Join us for Advocacy 101 webinar. This webinar will review basic information on how to be a successful advocate when meeting with elected officals. Anyone interested in participating in Rare Disease Day state house events are encouraged to attend this webinar.

Pre-Registration is required.

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Natural History Study Registries Applications Due

January 29 @ 8:00 am
NORD Headquarters,
55 Kenosia Ave.
Danbury, CT 06810 United States
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NORD-FDANatural History Study Project (6)

Applications are due for patient organizations to apply for the development of a patient registry for their patient community.

 

Please visit our website here for more information about this exciting opportunity. If you have any questions about this program, please contact Jacqueline Kraska at jkraska@rarediseases.org.

 

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February 2016

Due Date: Providence Marathon and Half Marathon Running for Rare Team Application

February 29
NORD Headquarters,
55 Kenosia Ave.
Danbury, CT 06810 United States
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Applications for the Providence Marathon and Half Marathon Running for Rare Team are due by February 29th. Please apply here. 

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