Join us for Advocacy 101 webinar. This webinar will review basic information on how to be a successful advocate when meeting with elected officals. Anyone interested in participating in Rare Disease Day state house events are encouraged to attend this webinar.Find out more »
Applications are due for patient organizations to apply for the development of a patient registry for their patient community.
Please visit our website here for more information about this exciting opportunity. If you have any questions about this program, please contact Jacqueline Kraska at firstname.lastname@example.org.
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