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For Patient Organizations


Become a NORD Member Organization

NORD members understand that we speak with a louder voice when we work together. Read the benefits of membership.

Apply for Organizational membership

NORD welcomes nonprofit patient organizations who advocate on behalf of patients with rare diseases to join their membership community. View the application.

Current List of member Organizations

NORD's organizational membership currently includes 225 patient organizations. View the members.

Build and Grow a Patient Organization

NORD staff members welcome opportunities to share their experience and advice with individuals who are launching or leading rare-disease patient organizations. Learn More.

Organization Stories

Learn how some of NORD's member organizations help their members. View these videos.

NORD Registry Platform

NORD’s web-based registry platform provides a powerful engine for rare disease patient organizations to collect and manage patient-reported outcome data. Learn more.

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