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For Patients and Families


NORD Patient Assistance Programs

NORD offers programs to help patients access certain medications. These include free-drug, co-pay assistance, early and expanded access, emergency access, and travel/lodging assistance.

NORD Patient Information Center

Get information about rare diseases and helpful resources. Contact NORD's genetic counselor.

NORD Patient Meetings

Meet face-to-face with others experiencing the same challenges. Share support and information.

Online Patient Communities

Participate with others online who care about rare diseases.

Patient Stories

Learn about living with rare diseases through these patient stories.

News About Clinical Trials

Learn about research on your rare disease and how to get involved.

Researcher Stories

Meet some rare disease researchers.

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