NORD Patient Meetings
NORD hosts both regional and national meetings for patients and their families. Learn about upcoming events hosted by NORD and our Member Organizations.
NORD has been hosting a series of workshops, webinars and in-person meetings to help NORD and its Members collaborate effectively. Learn more about the previous meetings and up-coming opportunities for collaboration. Learn More.
On February 17, 2011, NORD hosted a conference in Washington DC for all stakeholders concerned about the fact that patients with certain rare diseases often experience difficulty accessing medical foods required for their care. NORD will continue to monitor and work on this issue through its advocacy programs and with stakeholders who participated in the February conference. View the presentations from the meeting.
NORD hosts meetings for patients and families affected by paroxysmal nocturnal hemoglobinuria (PNH) throughout the nation. Learn about upcoming meetings and view slideshows of past presentations.