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PNH Meetings

NORD hosts regional PNH meetings at locations across the U.S. for patients and families affected by paroxysmal nocturnal hemoglobinuria (PNH), a rare acquired stem cell disorder.  These events are an opportunity for individuals to meet other patients and speak with a medical professional.  The meetings provide an opportunity to meet in small groups and gain the encouragement and hope that comes from meeting face-to-face with others affected by the same disease.


Upcoming Meetings

NORD will be hosting a series of 10 patient meetings in 2014 for Paroxysmal Nocturnal Hemoglobinuria. The PNH meetings are for patients and their families.

The 2014 meeting dates and locations are:

  • *July 19, 2014: New York City
  • *September 6, 2014: Baltimore
  • September 12-13: Chicago- View the brochure
  • October 24-25: Westchester, NY View the brochure
  • *November 1, 2014: Chicago
  • November 14-15: San Diego

Register for a 2014 meeting

*These meetings are one-day lunch meetings. More information about the structure of these meetings will be coming soon.

The dates are subject to change. For more information please contact Susan Olivo at solivo@rarediseases.org.

AA&MDS International Foundation is also hosting the following patient conferences:

  • Detroit, MI: July 26, 2014
  • Louisville, KY: September 20, 2014
  • New Orleans, LA: October 11, 2014
  • Miami, FL: November 18, 2014

Learn more about these meetings here.


Past Presentations

Dr. Bessler- Philadelphia

Dr Tiu- San Antonio, Texas

Dr. Bart Scott- Portland

Dr. Goldberg- Orlando

Dr. Monica Bessler - Fort Lauderdale

Dr. Carlos deCastro - Atlanta

If you do not have Power Point on your computer, you can download a free viewer here.

 
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