PNH Regional Meetings
NORD hosts regional PNH meetings at locations across the U.S. for patients and families affected by paroxysmal nocturnal hemoglobinuria (PNH), a rare acquired stem cell disorder. These events are an opportunity for individuals to meet other patients and speak with a medical professional. The meetings provide an opportunity to meet in small groups and gain the encouragement and hope that comes from meeting face-to-face with others affected by the same disease.
NORD will be hosting a series of 10 patient meetings in 2014 for Paroxysmal Nocturnal Hemoglobinuria. The PNH meetings are for patients and their families.
Our first meeting will be held in Orlando, FL on February 7-8.
Other NORD PNH meetings planned for 2014 will be held in San Antonio, Baltimore, Chicago, Raleigh, Providence, Denver, the White Plains area and San Diego.
AA&MDS International Foundation is also hosting the following patient conferences:
- Los Angeles, CA: April 5, 2014
- Philadelphia, PA: May 17, 2014
- Louisville, KY: July 26, 2014
- Detroit, MI: September 20, 2014
- New Orleans, LA: October 11, 2014
- Miami, FL: November 18, 2014
Learn more about these meetings here.
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