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PNH Regional Meetings

NORD hosts regional PNH meetings at locations across the U.S. for patients and families affected by paroxysmal nocturnal hemoglobinuria (PNH), a rare acquired stem cell disorder.  These events are an opportunity for individuals to meet other patients and speak with a medical professional.  The meetings provide an opportunity to meet in small groups and gain the encouragement and hope that comes from meeting face-to-face with others affected by the same disease.


Upcoming Meetings

Chicago: September 28

Philadelphia: October 5

Nashville: October 19

Los Angeles: November 1

For more information please contact us here.


Past Presentations

Dr. Goldberg- Orlando

Dr. Bessler- Texas

Dr Tiu- Ann Arbor

Dr. Lawrence Rice- Houston

Dr. Monica Bessler - Fort Lauderdale

Dr. Carlos deCastro - Atlanta

Dr. Charles Farber - Boston

Dr. Gabrielle Meyers - Portland

Dr. Rosse - Orlando

Dr. Mary Ann Skiba - Denver

Dr. Ilene C Weitz - Los Angeles

If you do not have Power Point on your computer, you can download a free viewer here.

 
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