You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Institute for Families

Address

4650 Sunset Blvd Mail stop 111
Los Angeles, CA 90027
USA

Phone

323-361-4649

Fax

323-665-7869

800 Number

--

TDD

--

Email Address

info@instituteforfamilies.org

Website

http://www.instituteforfamilies.org

The Institute for Families is a non-profit, voluntary organization dedicated to providing support, information, and understanding to families affected by visual impairment. All services are provided at no cost to families and professionals. Funding is provided by private donations. Established in 1987, the institute provides consultation and therapy for parents, siblings, and extended family members, and refers parents and physicians to organizations specializing in meeting the needs of children with vision impairment. Educational materials include regularly published journal articles, booklets, a regular newsletter, and videotapes that offer practical suggestions and coping strategies for individuals who are visually impaired. The institute also provides nationwide "in service training" for physicians, residents, medical students, nurses, and other healthcare workers to enhance their understanding of issues facing affected families.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .