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Adams Oliver Syndrome Support Group
a/k/a: AOS
Address
14 College View
Connah's Quay
Deeside, CH5 4BY
United Kingdom
Phone
012-448-16209
Fax
--
800 Number
--
TDD
--
Email Address
sandy.ivins@btinternet.com
Website
The Adams Oliver Syndrome Support Group (AOS) is an organization that works to create and enhance public awareness about Adams Oliver syndrome, a rare genetic disorder characterized by distinctive malformations of the scalp and abnormalities of the fingers, toes, arms, and/or legs. The group provides an information packet on this inherited disorder and is working to build a network of people who can discuss common problems and concerns that arise for affected individuals, families, friends, and caregivers.
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