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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Tuberous Sclerosis Alliance
a/k/a: TSA
Address
801 Roeder Road
Suite 750
Silver Spring, MD 20910
US
Phone
301-562-9890
Fax
301-562-9870
800 Number
800-225-6872
TDD
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Email Address
info@tsalliance.org
Website
The Tuberous Sclerosis Alliance (TSA) is a voluntary non-profit organization dedicated to finding a cure for tuberous sclerosis complex (TSC) while improving the lives of those afflicted. TSC (tuberous sclerosis complex) is a genetic disorder that causes tumors to form in various organs, primarily the brain, heart, kidney, liver, skin and lungs. People with TSC often develop epilepsy, autism and learning and behavioral problems. The TS Alliance is committed to promoting and sponsoring medical research related to the diagnosis, cause, management, and cure of TS, and ensuring that affected individuals and families have access to appropriate medical services, support services, and resource information. It is involved in the development of public and professional educational programs aimed at increasing awareness of TS and prompting early diagnosis and effective treatment.
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