You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Oley Foundation

a/k/a: None

Address

43 New Scotland Ave., MC-28
Albany Medical Center
Albany, NY 12208-3478
USA

Phone

518-262-5079

Fax

518-262-5528

800 Number

800-776-6539

TDD

--

Email Address

dahlr@mail.amc.edu

Website

http://www.oley.org

The Oley Foundation is a national, non-profit organization dedicated to donating tube-feeding supplies, providing educational and emotional support, outreach activities, and clinical outcome information for individuals who depend on home intravenous (parenteral) and tube (enteral) nutrition, their families, professionals, and others. Individuals who depend on such nutrition include those who cannot receive enough nutrients from the food they eat because of severe gastrointestinal disorders that may impair their swallowing or intestinal absorption. The foundation facilitates a national network of regional volunteers who provide emotional support and outreach at the local level. Comprised of individuals who are themselves users of home nutrition and their family members, the network offers services ranging from telephone support and hospital visitation to lectures and self-help get-togethers. The Oley Foundation also sponsors yearly conferences that bring together home nutrition users with experts in the field. Educational materials produced by the Oley Foundation include brochures, audio-visual aids, and information about travel, swimming, and other topics.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.