The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Exceptional Parent (Magazine for Parents of Children with Disabilities)
65 East Route 4
River Edge, NJ 07661
The Exceptional Parent is a monthly magazine published for families and professionals. Its editorial mission is to reach out to mothers and fathers of children and young adults with disabilities and special health care needs; to empower parents and professionals by providing practical information and emotional support; to appreciate that parents are the most important experts in the lives of their children; to energize parents and professionals; and to share ideas and experiences so parents, professionals, people with disabilities, and advocates can learn from one another and better collaborate to serve all children and families. Its regular "Search and Respond" column gives readers an opportunity to exchange information about their practical experiences meeting the everyday challenges of life with a child or adolescent with a disability.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.