You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

SIDS Educational Services, Inc.

a/k/a: SIDS-ES

Address

PO Box 2426
Hyattsville, MD 20784-0426

Phone

301-322-2620

Fax

301-322-9822

800 Number

--

TDD

--

Email Address

sidses@aol.com

Website

http://www.sidssurvivalguide.org

The SIDS Educational Services, Inc. (SIDS-ES) is a voluntary, self-help organization that assists those who have lost children to sudden infant death syndrome (SIDS) to deal with their grief. Sudden infant death syndrome (SIDS) is the sudden death of any infant or young child that is unexpected by history and in which no adequate cause for death can be found. The organization publishes a book entitled "The SIDS Survival Guide" that is written by parents who have been affected by SIDS and experts for bereaved families and professionals. Also available is a brochure "Empathetic Support to Newly-Bereaved Families and Those Who Care About Them." SIDS-ES provides free peer contact assistance to newly bereaved families and has a book sponsorship program whereby companies, individuals, and groups donate books to newly bereaved families (often via SIDS support groups) as well as to public libraries, hospitals, doctors, police officials, and emergency responders.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .