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Alagille Syndrome Alliance

a/k/a: ASA


10500 SW Starr Drive
Tualatin, OR 97062





800 Number




Email Address


The Alagille Syndrome Alliance (ALGSA) is a non-profit advocacy and support organization for people affected by Alagille syndrome (ALGS), a rare genetic disorder. Established in 1993, the ALGSA is dedicated to providing support to individuals with this disorder, their family members, and healthcare professionals who care for them. The ALGSA advocates for continuing medical research into the cause, prevention, and treatment of ALGS, offers advice through specialists on its Medical Advisory Board, and funds research grants. The ALGSA serves as a central location for resources related to the diagnosis and treatment of this rare disorder.

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