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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Alagille Syndrome Alliance

a/k/a: ASA

Address

10500 SW Starr Drive
Tualatin, OR 97062
USA

Phone

503-885-0455

Fax

503-885-0455

800 Number

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TDD

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Email Address

alagille@alagille.org

Website

http://www.alagille.org

The Alagille Syndrome Alliance (ALGSA) is a non-profit advocacy and support organization for people affected by Alagille syndrome (ALGS), a rare genetic disorder. Established in 1993, the ALGSA is dedicated to providing support to individuals with this disorder, their family members, and healthcare professionals who care for them. The ALGSA advocates for continuing medical research into the cause, prevention, and treatment of ALGS, offers advice through specialists on its Medical Advisory Board, and funds research grants. The ALGSA serves as a central location for resources related to the diagnosis and treatment of this rare disorder.

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