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Ontario Rett Syndrome Association
a/k/a: CRSA
Address
P.O. Box 25096
London
Ontario, N6C 6A8
Canada
Phone
519-474-6877
Fax
519-850-1272
800 Number
--
TDD
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Email Address
jill@rett.ca
Chapters
5
Website
The Ontario Rett Syndrome Association is a non-profit voluntary organization dedicated to providing parents and caregiver's current information, assistance, and support to ensure the best quality of life for all girls and women with Rett Syndrome. Rett Syndrome, a rare congenital neurological disorder that affects only females, is characterized by progressive degeneration of certain tissues of the brain, resulting in loss of previously acquired mental and motor skills, impaired control of voluntary movements (ataxia), episodes of uncontrolled electrical disturbances of the brain (seizures), autistic behavior, and/or other abnormalities and physical features. Established in 1985 and consisting of five provincial associations, CRSA is dedicated to providing the most current information on Rett Syndrome to affected families and health care professionals to assist in the diagnosis and treatment of the disorder; ensuring that families and caregivers understand what services are available to them in their respective provinces; offering networking services; and putting affected families and health care professionals in contact with one another. The Resource Centre provides a variety of educational materials including medical journal articles, books, videos, and a quarterly newsletter.
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