The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Canadian Syringomyelia Network
69 Penny Crescent
Ontario, L3P 5X7
The Canadian Syringomyelia Network (CSN) is a non-profit organization dedicated to serving as a support network for people with syringomyelia, a rare progressive condition characterized by the presence of abnormal, fluid-filled cavities within the spinal cord. Established in 1992, CSN acts as an information and referral network; builds awareness among the community; assists those who wish to establish support groups; compiles a database of people in Canada who have shown an interest in CSN and its mission; and produces a newsletter for its members and those interested in CSN's activities. The Canadian Syringomyelia Network also organizes periodic meetings and conferences, offers patient networking services, provides referrals, and produces educational materials including brochures, reports, and a regular newsletter.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.