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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Periodic Paralysis Association

a/k/a: PPA

Address

155 West 68th Street
Apt. 1732
New York, NY 10023
USA

Phone

407-339-9499

Fax

407-339-9499

800 Number

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TDD

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Email Address

lfeld@cfl.rr.com

Website

http://www.periodicparalysis.org

The Periodic Paralysis Association (PPA) is a non-profit corporation dedicated to providing educational information, advocacy and genetic testing to individuals suffering from the class of disorders known as periodic paralysis and non-dystrophic myotonia. These disorders are characterized by episodic loss of muscle tone ranging from mild weakness to profound global flaccid paralysis, progressive permanent muscle deterioration, severe muscle stiffness and various degrees of myotonia, twitching or other involuntary muscle movement, cardiac irregularities, and difficulty breathing. These disorders are also known as channelopathies and include hyperkalemic periodic paralysis, hypokalemic periodic paralysis, other atypical forms of periodic paralysis, Anderson's syndrome, thyrotoxic periodic paralysis, various myotonias (paramyotonia congenita, Becker's and Thomsen's myotonia, and others). The PPA also addresses periodic paralyses related to sleep disorders.

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