The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
The QTsyndrome.ch is a web site on the Internet created by an individual with LQTS from Switzerland. There are two forms of long QT syndrome, one without deafness (Romano Ward syndrome) and one with deafness (Jervell and Lange-Nielsen syndrome). Long QT syndrome is characterized by an abnormality in the heart's electrical system. In the lower chambers (ventricles) of the heart, the normal duration of one phase of electrical activity is referred to as the Q-T interval. In long QT syndrome, there are abnormally prolonged intervals of electrical activity in the ventricles (prolonged Q-T), resulting in seizures and a fast, uneven heartbeat (ventricular fibrillation). The main goal of the web site is to provide information about long QT syndrome to affected individuals, their families, medical professionals, and interested individuals worldwide. The site also provides information on diagnostic criteria and potential therapies and has dynamic linkage to sites with further information.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.