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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

QTsyndrome.ch

a/k/a: LQTS-EIC

Address

Ronnerweg 2
Nidau, 2560
Switzerland

Phone

004-179-4741535

Fax

--

800 Number

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TDD

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Email Address

info@qtsyndrome.ch

Website

http://www.qtsyndrome.ch/index.html

The QTsyndrome.ch is a web site on the Internet created by an individual with LQTS from Switzerland. There are two forms of long QT syndrome, one without deafness (Romano Ward syndrome) and one with deafness (Jervell and Lange-Nielsen syndrome). Long QT syndrome is characterized by an abnormality in the heart's electrical system. In the lower chambers (ventricles) of the heart, the normal duration of one phase of electrical activity is referred to as the Q-T interval. In long QT syndrome, there are abnormally prolonged intervals of electrical activity in the ventricles (prolonged Q-T), resulting in seizures and a fast, uneven heartbeat (ventricular fibrillation). The main goal of the web site is to provide information about long QT syndrome to affected individuals, their families, medical professionals, and interested individuals worldwide. The site also provides information on diagnostic criteria and potential therapies and has dynamic linkage to sites with further information.

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