You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Hereditary Multiple Exostoses Support Group

a/k/a: HME Support Group

Address

PO Box 207
Chester le Street
Oxford, DH3 9AR
United Kingdom

Phone

012-046-97144

Fax

--

800 Number

--

TDD

--

Email Address

support@hmesg.org.uk

Website

http://www.hmesg.org.uk

The Hereditary Multiple Exostoses (HME) Support Group is a voluntary, self-help organization in the United Kingdom dedicated to providing information and support to families affected by hereditary multiple exostoses, a rare disorder characterized by multiple bony growths (multiple exostoses) on the surface of various bones of the body. Such bony growths may cause deformities, such as of the shoulder, ankles, ribs and/or wrists. The disorder may be inherited as an autosomal dominant trait. The HME Support Group was established in 1997 and currently has approximately 300 members. The group links families in similar situations and geographical areas; holds regular meetings, publishes a newsletter and has a web site.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.