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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Canadian Association for Familial Ataxias - Claude St-Jean Foundation
a/k/a: ACAF-CAFA
Address
3800 Radisson Street Office 110
Quebec, H1M 1X6
Canada
Phone
514-321-8684
800 Number
855-321-8684
TDD
--
Email Address
ataxie@lacaf.org
Website
The Association Canadienne des Ataxies Familiales/Canadian Association for Familial Ataxias (ACAF) is a non-profit organization in Quebec dedicated to ensuring the pursuit of medical research on familial (hereditary) ataxias, a group of rare genetic disorders. Initial symptoms include impaired coordination of voluntary movement (ataxia) and unsteadiness when walking (uneven gait). Due to progressive difficulties walking, affected individuals eventually need to use a mobility aid device (cane, walker or wheelchair). The Canadian Association of Familial Ataxias (formerly known as The Canadian Association of Friedreich's Ataxia) was established in 1972 and currently has approximately 600 members. The association supports various projects in which researchers are working to better understand and eventually find cures for the different forms of familial ataxias. CAFA also offers a variety of materials that provide understandable information on the disorders, and research updates.
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