The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Lymphoedema Support Group - Tasmania
42 Stanley St
The Lymphoedema Support Group - Tasmania is a voluntary, self-help organization in Australia dedicated to providing information and support to individuals affected by lymphedema, educating and supporting family members, and promoting professional and public awareness. Lymphedema is characterized by an abnormal accumulation of lymph fluid, in and associated swelling of, certain body tissues due to lymphatic system abnormalities that cause obstruction of normal lymph flow into the bloodstream. Lymph is a bodily fluid that contains certain white blood cells (lymphocytes), fats, and proteins, and functions as an essential part of the immune system. It accumulates outside blood vessels in spaces between cells in tissues and flows back into the bloodstream via lymph vessels. Individuals with lymphedema may experience swelling that increases over time, a feeling of heaviness and discomfort in the affected area, pain, susceptibility to infection, and, in some severe cases, loss of mobility. The Tasmanian Lymphoedema Support Group was established in 1994 and currently has approximately 80 members. The group engages in patient advocacy and lobbying efforts, promotes research, and provides referrals. The Tasmanian Lymphoedema Support Group also provides a variety of educational materials including brochures and publishes a regular newsletter.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.