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European Lupus Erythematosus Federation
27-43 Eastern Road
Essex, RM1 3NH
The European Lupus Erythematosus Federation (ELEF) is an international, voluntary federation that consists of national lupus groups throughout Europe. Systemic lupus erythematosus (SLE), also known as lupus, is an autoimmune disorder characterized by chronic inflammation affecting connective tissues of the body. Different tissues and organs may be affected, and the range and severity of associated symptoms and findings may vary from case to case. In some affected individuals, symptoms may include extreme fatigue; muscle pain; joint swelling, stiffness, and pain; skin rashes; hair loss; and other abnormalities. Established in 1989, the European Lupus Erythematosus Federation currently represents 15 countries, 16 lupus organizations, and approximately 16,500 affected individuals and family members. The ELEF is committed to collecting information on all medical and psychosocial aspects of lupus; promoting awareness of the disease among individuals with lupus, the general public, and members of the health, welfare, and medical professions; and encouraging and conducting surveys and research projects related to the disease and publishing the results of such research. The federation is also dedicated to promoting awareness of lupus support groups that are available for affected individuals and family members in each member country; sponsoring or promoting European symposia on all aspects of lupus; gaining representation on any European or international body whose interests will be of benefit to members of the federation; and assisting with the establishment of support groups in other European countries where none currently exists.
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