You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Air Charity Network


4620 Haygood Road Suite 1
Virginia Beach, VA 23455





800 Number







The Air Charity Network (ACN) is a national, non-profit organization of private pilots who donate their time, skills, aircraft, and fuel to fly medical missions. Founded in 1978, the program was initially established to provide efficient transportation of time-critical medical cargo. In 1984, the organization's services were expanded to include ambulatory patients who require life-sustaining treatments, such as surgery, chemotherapy, radiation, or medical care, at medical facilities far from home and who cannot afford the cost of travel. The program, which initially included 25 interested pilots in California, has grown to include over 900 pilots nationwide. Services are provided at no cost to patients or referring agencies. Air Charity Network provides flights for patients who fulfill certain criteria (e.g., demonstrated medical and financial needs, etc.) and for an accompanying support person or persons, such as the parents of an ill child. The organization does not limit its services to a specific age group of patients nor to specific medical diagnoses. In addition to providing flights for patients who need to travel to medical treatment centers, AirLifeLine also offers flights to help fulfill the wishes of terminally ill patients. This type of request must come from an organization, agency, or hospital that is aware of the patient's situation. To a limited degree, the program also flies time-critical cargo, such as blood or donor organs for transplants and other types of surgery. AirLifeLine receives referrals from hospital social workers, discharge planners, and voluntary organizations. In addition, patients and family members may contact the organization for assistance.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .